WeThink ALSux 2026 Walk Page
Its hard to believe it has been a year since I joined the board of ALS United of Georgia so I could give back to the organization that was so vital to my family after Jeff was diagnosed with ALS. I joined the board of ALS United of Georgia so that I could give my time, not only to fundraise for the walk each fall, but throughout the year to help the organization grow. During this year, I have learned even more ways that the organization helps those Georgia families affected by ALS. There are other organizations, both nationally and locally that work to help find a cure for this horrible disease, but this is the only one I know where the primary function is to help improve the lives of families affected by the disease- on a personal level- while also supporting research to help find a cure.
This year is the 25th anniversary of the walk. Over the past 25 years, many things have changed, but the importance of supporting those affected by ALS has not. I hope this year proves to be the most successful fundraising year ever. I hope that my friends, colleagues, and family will further Jeff's legacy by continue to support ALS with monetary or time donations (or both :) ). Thank you all for continuing this journey with me! For those of you new to our family's story... it is below.
Our family's life was forever changed on February 8, 2017- the day that Jeff was diagnosed with ALS. He had been a slightly slurring his words in the evening and after visiting with his family over the Christmas holiday, we decided to get him checked out. The doctors were able to rule out a stroke but advised that we see a neurologist. With the help of a friend who had connections at Emory, he was able to be seen quickly. What we did not know, at the time, is that he had set us up with a neurologist to rule out the most severe possibilities- knowing he could always get referred to someone else once the 'really bad stuff' was ruled out. He went to the appointment and went through a battery of tests and we assumed from there we would be having more follow ups before any sort of diagnosis was determined. The doctor, who was one of the 2 ALS specialists in Atlanta, instead gave him the devastating news- that he had the Bulbar form of ALS- which means it affects his swallowing and speech first. It was a complete shock, but was confirmed by a second opinion with the Specialist in Augusta. Our lives were not the same since that day and he continued to decline on a rapid pace. By November of 2017, he had a feeding tube placed to help him get nutrition. He was unable to swallow properly by that point. He also began losing mobility in his right arm and the ability to speak clearly. Jeff continued to work as long as he could, and his work (both of our work, actually) was very supportive and flexible in trying to help maintain a normal life for as long as possible. He remained a part of American Woodmark until June of 2018, and traveled to visit his family as much as possible during that time. He talked to his family in Rhode Island each day through FaceTime calls and it was one of the highlights of his day. Unfortunately, he also contracted pneumonia due to the inability of his diaphragm to make his lungs work properly and became weaker each day. In the last few months of Jeff's life, he was truly blessed to have his fraternity brothers come to Atlanta for an impromptu reunion, go on a Disney cruise with the Harwood clan, visit with all of our local friends during a neighbhorhood sponsored corn hole (and mother nature sponsored wet t-shirt) tournament in his honor, and visit all of his Rhode Island family for July 4th. Our family is so glad that so many people were able to spend time with Jeff during this time. Ultimately, the disease took over and on July 18th, surrounded by his family, he passed away. The world will never be quite the same without him and all of his passion for life. We hope that his outgoing personality and big spirit will live on within those whose lives he touched and hope that we can try to make an impact on seeing this horrible disease being eradicated from the earth!! We hope that taking part in the walk is one way that we can give back and pay it forward.
Amyotrophic lateral sclerosis (ALS) is a progressive neuromuscular disease that slowly robs a person of the ability to walk, speak, swallow, and breathe. It can strike anyone and, although there has been a lot of advancements in ALS research, we still don't know what causes it. An ALS diagnosis is fatal because there is no cure.
I am walking so that, one day, when Georgians hear the words, "You have ALS" it will no longer mean that they likely will die within two to five years. I am walking so that Georgians living with ALS today know that they are not alone. I'm walking to assure that when they need help, they will be able to get it from ALS United of Georgia. I am walking to give them hope.
You may not know anyone with ALS, but you do know me, and I am asking for your support. Will you please consider joining me to make strides in the fight against ALS? You can join our team or make a gift to support our team. Either way, with your help, we can enhance the lives of people living with ALS, every day until we find a cure.
Achievements
$1,000 Milestone
Raised the amount of money defined for this milestone
Personal Progress:
of Goal
$3,627
Raised
$6,000.00
Fundraising Honor Roll
Mike and Leslie Hostinsky
Joy Goldblatt
Chad Hamilton
$259
Pete Sicilia
$259
Michael Barron
$250
Vince Turturro
$204
Mr. David L Harwood
$200
Bart & Kara Segal
$118
Plugge family
$103
Ryan Collins
$103
Spence McClelland
$103
Ryley Family
$103
Anonymous
Gillespie family
$103
Kelly Gillen
$102
Mary Beth Johnston
$102
Paul Gratt
$102
Denise Kiker
$100
Berkovits Family
$100
Megan Gregory
$77
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