The recent diagnosis of ALS for my wife, Laurie, has profoundly affected not just her, but our entire family and community. As a mother and stepmother to Ryan, Cameron, Liam and Holden, Laurie has always been the heart of our household. She radiates with love, laughter, and warmth. Her quick wit and ability to bring people together have created countless cherished memories. Now, as we navigate this challenging journey, we find ourselves facing an emotional landscape that is both overwhelming and transformative.
Our boys, tender-hearted and resilient, are grappling with a mix of confusion, sadness, and an emerging sense of strength. They are learning to confront their feelings and support each other in ways they never anticipated. Each day presents a new challenge, but we are committed to fostering an environment where they can express their emotions freely and find solace in one another. The impact of this diagnosis extends beyond our immediate family; it ripples through our friends and extended family, who are equally affected by Laurie’s diagnosis. They have always looked to her for guidance and joy, and now they find themselves rallying around us, offering love and support in ways that are both heartwarming and humbling.
We believe that raising awareness about ALS is crucial—not just for those diagnosed, but for everyone connected to them. It’s important for people to understand the emotional struggles faced by families navigating this disease, as well as the unseen battles those with ALS endure. By participating in Walk ALS Georgia, we hope to unite our community and shed light on the realities of living with ALS. This event is more than just a walk; it is a chance to honor Laurie and all those affected by ALS, while fostering understanding and compassion within our community.
Together, we can amplify our voices and share our story, ensuring that the struggles and triumphs of those living with ALS are recognized and addressed. We invite everyone to join us in this mission, to raise awareness, and to support one another through the challenges that lie ahead.
- Ethan Hostetler
We are looking forward to walking united for a cure on Walk Day and hope you will join us. If you want to walk with us – or support a team member who is walking – you are in the right place!
Every 90 minutes. That’s how often someone learns they’ve been diagnosed with ALS. In that moment, their life is changed forever. And from that moment on, they are left to navigate an unknown future - a future living with ALS.
Every 90 minutes. That’s how often someone living with ALS loses his battle because there is no cure for this disease.
We are walking so Georgians living with ALS can get the support they need to live a full life post-diagnosis. It costs on average $250,000 a year to provide the care people living with ALS and their families need. Walk ALS Georgia raises money to provide local care services like direct financial support, respite care, transportation services, and equipment loans to help alleviate that cost for families in Georgia.
We are also walking to support research efforts into treatments and a cure so that an ALS diagnosis is not fatal. Until that day, we will walk on. Join us!